Dementia is an Ugly Disease

A lot of you are younger so might be seeing this in your grandparents, but it really hits hard when it happens to your parents. One thing I'm experiencing now with my Mom who has it is the continued cognitive decline. She used to like listening to music and dancing and she barely recognized anyone except me. Previously (1 month ago) she would run to hug me when she would see me.

Then I took her to get a tooth extraction and they put her under. When she came out of sedation, she was yelling and screaming and was off. They had her on oxycodone for a few days, but when she came off of that, she was very distant in a certain sense. I was the favorite. I was always the favorite. My mom and I were closer than any of my other siblings and I am the baby of the family. 

I went through the role reversal stage  years ago where it is them taking care of you growing up to you taking care of them, but this week is hitting me hard - I have to take time off of work to see my Mom and now she's not even grateful to see me. She is in this autistic state acknowledging nothing. She is annoyed by everything. They doubled her dosage on the Lorazepam for anxiety, but I don't know what's going wrong there. She is still on edge and annoyed by everything. She is one step away from requiring additional care, which might be a crazy amount of money. 

I feel like I lost my mom. Even with her dementia going for a few years, she always smiled at me. Now its just nothing. Sometimes she kisses my head when I give her a hug and it literally means everything to me. To still have her here. And happy just for one moment. 

Anyone else go through a family member with dementia/Alzheimer's?

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m_1

Sorry to hear about your mom. 

I have a grandma with dementia I have been flying back more frequently to visit. It has definitely been getting worse every ~4 to 6 months. Luckily have family that are helpful for taking care of her, but I don't know how feasible that is in ~12 months.

Thanks bro. Yeah my Dad and I took care of her for a while, but she would just get up out of the room and walk out the door over and over again, day and night. My Dad couldn't even sleep at night and slept in his clothes to chase her if needed. Also, my Dad wouldn't bathe her and I definitely couldn't handle the psychological damage of helping with bathing and dressing, so she basically wore the same clothes until we took her into Memory Care and now they bathe (shower) her often and dress her every day. 

"If you always put limits on everything you do, physical or anything else, it will spread into your work and into your life. There are no limits. There are only plateaus, and you must not stay there, you must go beyond them." - Bruce Lee
 

Sorry to hear. I went through this with my grandpa - he had Alzheimer's. He and I were very close and it was hard. I can't imagine this happening to one of my parents and I pray that it doesn't. I remember watching my dad and his siblings try to interact with him and the realization that he no longer even knew who they were absolutely crushed them. No words can really even explain it. Hang in there man.

 
AcceptanceSpeech

Sorry to hear. I went through this with my grandpa - he had Alzheimer's. He and I were very close and it was hard. I can't imagine this happening to one of my parents and I pray that it doesn't. I remember watching my dad and his siblings try to interact with him and the realization that he no longer even knew who they were absolutely crushed them. No words can really even explain it. Hang in there man.

Thanks bro 🙏🏼 

"If you always put limits on everything you do, physical or anything else, it will spread into your work and into your life. There are no limits. There are only plateaus, and you must not stay there, you must go beyond them." - Bruce Lee
 

Really sorry to hear this, that is absolutely heartbreaking. Sounds like you two have a beautiful relationship, wishing your family the best ❤️

 

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"If you always put limits on everything you do, physical or anything else, it will spread into your work and into your life. There are no limits. There are only plateaus, and you must not stay there, you must go beyond them." - Bruce Lee

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